Tilly’s passionate family member Rory Brockwell and his great mate Ricky Robertson decided to spread the word of EB and help Tilly’s rare disease, that’s when Tough Tilly Day was formed to raise much needed awareness and funds for Epidermolysis Bullosa (EB) and Debra Australia.www.debra.org.au

There have been 4 annual Tough Tilly Day’s with the fifth event set for 6th January 2018 at the Port of Echuca Wharf.

All Tough Tilly events have been a huge success and its profile is continually growing with the 2017 featuring the headlining acts, The voices of Taxiride’s Jason Singh, Boom Crash Opera’s Dale Ryder and Choirboys Mark Gable who rocked the night away.

The team have been busy establishing their very own ‘Not for Profit’ charity called the EB Research Foundation (EBRF). Our focus will now be on leading Global Research and striving to ultimately help find that cure for this terrible disease as we continue to raise much more awareness.

All proceeds from Tough Tilly Day will go directly to EBRF, whilst still supporting Debra Australia.

Below is a link to “Tilly’s Videos” the inspiration behind Tough Tilly Day.

We need to disclaim that the footage is very confronting but it will give you a little more insight into this horrible disease and what sufferers endure on a daily basis.